Hemofiliayhdistys Verenvuototaudit Ajankohtaista Julkaisut Yhteystiedot

The Finnish Hemophilia Society

The Finnish Hemophilia Society (SHY) is a non-profit patient organization for Finnish people with A or B hemophilia, von Willebrand disease or other rare bleeding disorders. Our membership consists of patients, their families and relatives and health-care professionals.

SHY office is located in Helsinki and we are working nationwide in Finland. We currently have about 700 members. Our society was founded in 1969 and is a national member organization of the World Federation of Hemophilia.

SHY offers a wide range of member services: meetings, member newsletter, publications, distributing information and organizing rehabilitation, summer camps and activity days. We are working in every way to improve level of hemophilia care in Finland and to help our members manage their disease. We co-operate with hemophilia organizations in other countries and participate in international hemophilia meetings and congresses.

Members of Board
Meri Korpilahti, precident
Katja Peltoniemi, vice president
Hannu Haaranen, tresurer
Elina Armstrong, physician board member
Marja Koli, board member
Maj-Lis Konnos, board member
Vesa Rainne, board member

Postal address
Suomen Hemofiliayhdistys ry.
Ansaritie 1 a
00350 Helsinki
FINLAND

Telephone
+358 9 4368 2992
At office hours (answering service outside office hours).

E-mail
info@hemofilia.fi
E-mail addresses of the board members: firstname.lastname@hemofilia.fi



      © Suomen Hemofilayhdistys 2016