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The Finnish Hemophilia Society
The Finnish Hemophilia Society (SHY) is a non-profit patient organisation for Finnish people with A or B haemophilia, von Willebrand disease or other rare bleeding disorders. Our membership consists of patients, their families and relatives and health-care professionals. SHY office is located in Helsinki and we are working nationwide in Finland. We currently have about 600 members. Our society was founded in 1969 and is a national member organization of the World Federation of Hemophilia (WFH) and European Haemophilia Consortium (EHC). We also cooperate with our Nordic neighbours and the Baltic countries and participate in international haemophilia meetings and congresses. SHY offers a wide range of member services: meetings, member newsletter Tiiviste, publications, information, some rehabilitation, summer camps and activity days. We are working in every way to improve level of haemophilia care in Finland and to help our members manage their disease. Members of Board 2021 The Office Telephone E-mail Please do not hesitate to contact the office if you have any questions about the society. |
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