Hemofiliayhdistys Verenvuototaudit Ajankohtaista Julkaisut Yhteystiedot

The Finnish Hemophilia Society

The Finnish Hemophilia Society (SHY) is a non-profit patient organisation for Finnish people with A or B haemophilia, von Willebrand disease or other rare bleeding disorders. Our membership consists of patients, their families and relatives and health-care professionals.

SHY office is located in Helsinki and we are working nationwide in Finland. We currently have about 600 members. Our society was founded in 1969 and is a national member organization of the World Federation of Hemophilia (WFH) and European Haemophilia Consortium (EHC). We also cooperate with our Nordic neighbours and the Baltic countries and participate in international haemophilia meetings and congresses.

SHY offers a wide range of member services: meetings, member newsletter Tiiviste, publications, information, some rehabilitation, summer camps and activity days. We are working in every way to improve level of haemophilia care in Finland and to help our members manage their disease.

Members of Board 2021
Meri Korpilahti, president
Marja Koli, vice president
Hannu Haaranen, treasurer
Kari Horko, board member
Elina Lehtinen, physician board member
Antero Risto, board member
Minna Tikka, board member
Santtu Valento, board member

E-mail addresses of the board members: firstname.lastname@hemofilia.fi

The Office
Postal address
Suomen Hemofiliayhdistys ry.
Ansaritie 1 a
00350 Helsinki
FINLAND

Telephone
+358 50 323 1356

E-mail
info@hemofilia.fi

Please do not hesitate to contact the office if you have any questions about the society.

Link to the membership form (only in Finnish) is here: https://secure.tietotoimisto.fi/ws/shy/

Please ask more about the membership and events from the office.



      © Suomen Hemofilayhdistys 2016